Supporting SMA Research One Bow At A Time

Okay...I just wanted to let everyone know that I am passionate about Sophia's Cure!  This organization cares about children and adults with SMA (Spinal Muscular Atrophy).  My daughter Larkin has SMA type 1...the most severe type of SMA.  She was given 2-4 years to live and she has made it to 5 years old.  She is a fighter but we can all make a difference to these kiddos by just donating for research.We are on the way to finding a cure but important research still needs to be funded.  There are several ways SCF is trying to raise money.  One is the contest on Facebook called Vivent Gives Back Project.  You can vote once a day from June 14th to August 27th. The winner is awarded $250,000 for their charity.  This is such an easy thing to do so why not vote?!  The other way is the 200 Commitments.  Hoping that 200 people would pledge to raise $5000 each we would raise a million dollars.  This is what Sophia's Cure had to say about the Commitment Challenge.

"We were recently contacted by someone who took notice of The 200 Commitments, inspired by the families working so hard to make a difference in this disease. It was your blogs and stories that have made a lasting impact. This person wanted to help change this disease. This donor, who wishes to remain anonymous, has donated…………. $400,000 to The Sophia’s Cure Foundation in recognition of your efforts. This money, in its entirety, will be donated to the Kaspar Labs for Gene Therapy. This $400,000 will be added to the $100,000 The Sophia’s Cure Foundation has in hand and has already pledged to commit, for a NEW $500,000 grant. This grant will be used to pay for Critical studies required by the Food and Drug Administration prior to a program moving into human clinical trials."

This is awesome news for SCF and the SMA community!  You can also just go to the the Sophia's Cure Foundation website and donate there. 

http://www.larkielubows.com/

This is the Sophia's Cure Bow that I designed especially for them.  50% of every one of these bows is donated to SCF.  The cost of one of these beauties is $14.00 so that means that $7.00 is donated each time someone selects this bow.  August is SMA awareness month and I'm planning a SPECIAL for that month.  More details closer to then....It's gonna be good I promise!

As of  today LARKIE LU BOWS has donated a little over $3000.00 to SMA charities. Now though I will only donate to the Sophia's Cure Foundation! I have been making bows for the last few years and this is a big deal to me!  I feel so good knowing that every little penny that I donate goes directly to research.  I am able to donate due to my wonderful customers and loyal followers.  Thank you from the bottom of my heart for all your support! 
http://www.sophiascure.org/donate